谢谢楼上各位的祝福和建议。病人是我的表姐夫，和表姐通过话了，她现在也有点接受植物人的结果，只是但凡有一丝能恢复的希望她都不想放弃。
去年我的一个舅舅在省立医院被确诊为骨髓纤维化，没有合适的治疗方案，只能靠每周输血维持，但我在上海帮他咨询医生给开了一种新药，治疗效果非常好，最长达到8个月没有输血。所以，我想美国会不会有国内还没有的新药或者新的治疗方法，只要有一丝希望我们也不会放弃。
脑干出血 is very difficult to treat in US too, one of relative had same situation and stated in hospital for a week and past away.
I am not a neurologist or neurosurg, but I did see similar patients before, I think the first 48-72 days are important, I trust the big hospitals in China should done the right thing, keep vital signs stable and avoid more bleeding.. For the rest of it, really there is no much medicines in US as well. Rehab is the key.
出血性 are different from the 血栓性, the later has some stent and invasive procedure to save the stroke area, but hemorrhagic usually has limited treatment. and also different situation with 骨髓纤维化
Bless
MM, your pictures and MRI image etc are too small, I cannot even see the details.
I am not a neurologist or neurosurg, but I did see similar patients before, I think the first 48-72 days are important, I trust the big hospitals in China should done the right thing, keep vital signs stable and avoid more bleeding.. For the rest of it, really there is no much medicines in US as well. Rehab is the key.
出血性 are different from the 血栓性, the later has some stent and invasive procedure to save the stroke area, but hemorrhagic usually has limited treatment. and also different situation with 骨髓纤维化
Bless
这个也太小了，估计专家来了看不清。他这个情况这么危险，这边的建议国内的医生能采纳么？还是在国内找专家会诊，看看有没有希望。
你这里听来的去和医生说，他们也会觉得你不是专家，不一定听你的。
不过还是bless，希望MM姐夫有转好。
谢谢楼上各位的祝福和建议。病人是我的表姐夫，和表姐通过话了，她现在也有点接受植物人的结果，只是但凡有一丝能恢复的希望她都不想放弃。
去年我的一个舅舅在省立医院被确诊为骨髓纤维化，没有合适的治疗方案，只能靠每周输血维持，但我在上海帮他咨询医生给开了一种新药，治疗效果非常好，最长达到8个月没有输血。所以，我想美国会不会有国内还没有的新药或者新的治疗方法，只要有一丝希望我们也不会放弃。
美国治疗都要有保险的，开药也是。这个疾病我知道一些，应该没有完全治疗的方法。骨髓干细胞移植是最根本的。但是大家也知道困难所在。
其他的治疗方法国内也可以上，但是都是减缓症状的。大多数就是blood transfusion维持着。
Please refer to a blog in China:
http://blog.sina.com.cn/u/1653920023 , you'll feel satisfied to some extent.
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